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A Caregiver' Story "I love your writing style. I just started your book and I can't put it down. I love the fact that when you quote statistics that are bad you always say things have improved and survival rates are better today."
— Marnie CNS Lymphoma survivor
"I just finished your book and found it very moving and very familiar."
— Marilyn , Guillain Barre survivor
Category Archives: Guillain Barre
Upkeep of Your Body After Illness I had planned a totally different subject for this post, something like odd expressions used by the Millenials, or understanding teenagers. (Yeah right) But this idea came to me with a comment from one … Continue reading
Guillain Barre Residuals as We Age A GBS patient once remarked, “This is a fascinating disease.” Yes, I reflect, indeed it is. GBS is highly unpredictable. Everyone recovers at a different rate and in various ways. What is a … Continue reading
A Little Microbe with aLotof Trouble There has been some talk at Face Book on a Guillain Barre discussion board regarding the implication of campylobacter jejuni, a bacteria commonly found in animal feces. How does this little microbe … Continue reading
Guillain Barre Residuals Every Guillain Barre survivor has at one time or another thought, “Is it coming back?” In fact most serious diseases evoke that thought more than once. Guillain Barre, unlike cancer, does not usually come back. At the … Continue reading
Recovering from Guillain Barre I recently read a couple of Facebook posts written by GBS survivors indicating that they were progressing quickly with their walking, swimming, etc. I, too, was anxious to regain strength and mobility in those dreary weeks … Continue reading
Guillain Barre leaves its mark on all of us. When the disease has run its course and we emerge from the recovery phase, whether confined to a wheelchair, dependent upon a walker or cane or walking independently, GBS is there … Continue reading
I’ve been reading Tracey Jones Clevenger’s posts about Guillain Barre on Facebook. Her page is a treasure trove of information about this puzzling and supposedly rare disease. Today I read about a young man whose pain did not allow him … Continue reading
As in past posts I have written about various ways people cope with pain, so it is with the way Guillain Barre survivors deal with life after GBS. Or life after any serious illness that leaves one living with a … Continue reading
As May is Guillain Barre Awareness month, my posts for the next few weeks will focus on this strange disease that is supposed to be rare. My findings, however, indicate that this autoimmune condition is not so rare. Just underpublicized.
Guillain Barre Awareness month begins today. Although considered a rare disease and with little funding appropriated for research GBS does not get the publicity of more common illnesses. GBS can strike anyone young or old. It can begin with a mysterious … Continue reading